We Have Become Travelers

Two years ago when my brother-in-law, John, died in a freak accident, I learned, not for the first or last time, that life goes on in autism’s shadow and light–and death, too. 

I couldn’t push the accident out of my mind for more than a few hours at a time. Six, even eight months later, I still read and reread the police reports, traffic citations, eyewitness accounts, tributes, family emails, news stories, organ donor papers, and obituaries. I could not make peace with it. The one night I set aside each week to write I spent writing about the accident—arranging and rearranging the facts at hand, telling and retelling the story, as if I could reach a different ending. 

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At the Movies

During the cold months before and after Christmas, my wife works most weekends, and since I’m a typical male parent, I soon—very soon—run out of educational activities for the kids and opt instead for a Saturday matinee. Maura, not a big movie fan, doesn’t feel left out. So we—the boys and I—become regulars. The teenage girls at the ticket booth smile when they see us coming and stop asking me for I.D. They guess which movie we’re seeing. Both boys love it and we pass some fine afternoons together. But with Colin there are perils.

On the way in or out, Colin insists on studying every single movie poster in the theater: he scrutinizes the images and reads off names of actors and directors, and the reviews: “Dad, A must-see family extravaganza!” Or “Two thumbs up, way up!” Or taglines like: “You’ll never be the same after this!” Continue reading

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Planets, Moons, Planetoids and The Periodic Table of the Elements

Colin fills 3×5 index cards with imaginary planets, moons, and planetoids—the well-tooled cards hole-punched on one corner and clipped together with a plastic ring (no doubt his mother’s work). He presents the cards to me as a treasure. Flipping through more than forty names and descriptions, I see hints of Greek and Roman mythology, Star Wars, Narnia, Hayao Miyasaki films, Middle Earth, and, most of all, The Periodic Table of the Elements, this month’s obsession.   Continue reading

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Freak Business

Autistism and musicAt age nine, Colin has entered a volatile stage. Tears and tantrums come easily, often, and unexpectedly. He talks loud much of the time, all but shouting in typical conversions. He commands and interrupts. He ignores repeated requests, even pleas, to quiet down. Yet, this little powder keg of a boy sits with pure focus over a book or at the piano. He sings like an angel in the Salt Lake City Children’s Choir, his voice ringing out with the other voices at The Cathedral of the Madeleine, in tune with the harp and organ, his eyes wide at the applauding crowd, the echoes, vaulted ceilings, stained glass windows, and candles.   Continue reading

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Notes from Tutors

Colin’s ABA* tutors, at least a dozen in the last five years, play a singular role in his life, even the ones that come and go after a few months. Several tutors have watched him grow up, rarely going more than a week without seeing him, becoming more like sisters than teachers or babysitters. Colin and his tutors play and argue, even bringing each other to tears—intimate enough to hurt or delight with a mere glance. The relationship plays out not just in our living room during ABA therapy but at horseback riding lessons, tag in the backyard, swimming lessons, or greeting a new puppy just adopted from the shelter, at birthday parties, wedding receptions, family vacations and emergencies.   Continue reading

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Imaginary Countries

To keep Colin occupied at church, I hand him a dozen blank index cards and a ball-point pen. He works steadily through the hour, head bent over the cards. He writes with care and pauses between words. I can’t tell what he’s writing. I get caught up in the meeting. Afterwards, Colin presses the pen and cards into my hand and rushes to his Sunday School class. I put the cards in my suit pocket where they stay until I’m fishing for a pen two weeks later, and I find Colin’s list of imaginary countries, each name written on a separate card along with a cryptic description:  Continue reading

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The Dead-end of Blame

I made a decision and I know that was how it had to be, and I did not blame anyone.

                                              —Czeslaw Milosz, “Yokimura”

I.

In the first years after our son’s diagnosis, we attend only one autism conference. We’re not registered and don’t join any sessions. My wife Maura and I come to meet with a well known physician who is speaking at the event. We leave our son, Colin, and his brother, Quinn, with a baby sitter, thinking we will only be consulting with the doctor. On arrival we learn the doctor must “see” Colin in order to continue treating him from out of state. So we reschedule our consultation for later that afternoon. My wife goes to retrieve the kids and I find myself alone at the conference with an hour to kill. The conference people kindly allow me to wander in the exhibit hall at no charge.  Continue reading

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